Theme 01: Structure of the CCI
Structure of the CCI: Regional, national, or cross-border CCIs should ideally bring together all oncological prevention, screening, care, and research structures (such as universities, hospitals, research institutes, and screening facilities) within their scope. These structures interface with one another, and the foundation of the CCI should be based on the needs of patients and citizens. A coordination board should represent all CCI participating entities, as well as public authorities and/or agencies.
Comprehensiveness: In addition to researchers, the CCI should include interdisciplinary and/or interprofessional disciplines along the patient pathway (both in hospitals and primary care). It is vital to integrate patient representatives and other stakeholders within the CCI framework.
Structure: The CCI comprises various collaborative structures tailored to specific tasks, such as network(s) for clinical research and network(s) for tumour-specific care. Each of these networks requires its own coordinating structure. There can be overlaps among the different layers of networked collaborative structures, as individuals and institutions may serve multiple roles. The scope of a CCI can be adapted based on country-specific characteristics.The term “CCI” refers to cooperation of institutions within the scope of the CCI. The CCI is not necessarily meant as an official institution or an organizational structure with command and control mechanisms.
Level 1
C111
A first meeting to define the scope of the Comprehensive Cancer Infrastrucutre (
CCI
) has taken place.
Level 2
C121
The scope of the
CCI
is presented and the participating independent institutions and their functions are named.
C122
The defined scope of the
CCI
covers a minimum of 3 institutions with different functions or scope in cancer care, research and education.
Level 3
C131
The defined scope of the
CCI
is nearly comprehensive and the CCI meets one of the following conditions:
- 70% or more of the oncological diseases and 70% or more of the incident cases in the region can be treated along the entire patient pathway within the CCI structures.
- The scope covers at least 6 of the 8 themes (including at least 2 themes from the themes 4-6).
C132
The representativeness of the participating institutions is described in relation to the region/MS and the catchment
area characteristics (e.g., why is the described scope selected; taking into account population density and linguistic characteristics).
Level 4
C141
If representativeness is not sufficient, measures are described on how it could be improved (e.g., cross-border collaboration).
| Level 1 | Level 2 | Level 3 | Level 4 | |
|---|---|---|---|---|
| The defined scope of the CCI is fully comprehensive (regarding topics and treated entities/cases) | C111 |
C121
C122 |
C131
C132 |
C141 |
Level 1
C211
An initial list of potential participating entities of the CCI that reflects the
themes of the MM
has been compiled.
Level 2
C221
Participating Entities of the CCI
are selected and responsible persons are named.
C222
The
participating Entities of the CCI
are selected in such a way that they together can fulfil the
comprehensive mission of the CCI
.
Level 4
C241
The collaboration and interaction with the
other stakeholders
is implemented.
Level 1
C212
Initial discussions regarding
cooperation agreements
have taken place.
Level 2
C223
Cooperation agreements
have been drafted.
Level 3
C231
Written
cooperation agreements
between the participating entities of the CCI are signed and in effect.
Level 4
C242
Cooperation agreements
are regularly reviewed and updated.
Level 1
C213
The Initial discussions have taken place regarding the possibility
of making the CCI's structure, objectives, and scope publicly accessible.
Level 2
C224
The
participating Entities of the CCI
are listed on a website. Resposible persons and contact details are named.
Level 3
C232
The contributions/scope, objectives and competencies of the CCI and its individual
participating entities
are presented to the public and other stakeholders.
| Level 1 | Level 2 | Level 3 | Level 4 | |
|---|---|---|---|---|
| Participating entities of the CCI are named | C211 |
C221
C222 |
C241 | |
| Written cooperation agreements between the participating entities are signed | C212 |
C223 |
C231 |
C242 |
| The structure, objectives, and scope of the CCI are publicly available |
C213 |
C224 |
C232 |
Level 1
C311
Initial discussions have taken place regarding the establishment of
rules of procedure
for the CCI.
C312
A first meeting of the
Interface
Working Group (IF-WG) has taken place.
Level 2
C321
Rules of procedure
for the CCI are drafted.
Level 3
C331
The CCI has established and finalised the
rules of procedure
, which are operational.
Level 4
C341
The
rules of procedure
are regularly reviewed and updated.
Level 1
C313
Initial discussions have taken place regarding the establishment of an annual budget and financing plan for the CCI.
Level 2
C322
An annual budget and
financing plan
for the CCI is drafted OR if funding sources are not feasible an explanation is provided.
Level 3
C332
The annual budget and
financing plan
for the CCI is in place OR if funding sources are not feasible an explanation is provided.
Level 1
C314
Initial discussions have taken place regarding the establishment of a coordination point/function within the CCI and the appointment of a head for the coordination point/function.
Level 2
C323
A coordination point/function is set up and a head for the coordination point/function is appointed.
Level 3
C333
The
tasks of the coordination point/function
are written in the CCI's rules of procedure and they are operational.
Level 1
C315
Initial discussions haven taken place regarding the appointment of a Chairperson and Deputy Chairperson for the CCI.
Level 2
C324
A chairperson and deputy chairperson are appointed by the coordination point/function.
Level 1
C316
Initial discussions have taken place concerning the involvement of representatives from CCI members in a coordination board.
Level 2
C325
A coordination board is appointed with representatives from all members of the CCI being actively involved.
Level 3
C334
The initiation of further boards should be reviewed in the coordination board and the rules of procedure are regularly reviewed and updated.
| Level 1 | Level 2 | Level 3 | Level 4 | |
|---|---|---|---|---|
| The CCI has rules of procedure | C311
C312 |
C321 |
C331 |
C341 |
| An annual budget and financing plan for the CCI is in place |
C313 |
C322 |
C332 |
|
| A coordination point/function is set up |
C314 |
C323 |
C333 |
|
| A chairperson and deputy chairperson for the CCI are appointed by the coordination point/function |
C315 |
C324 |
||
| A coordination board is appointed |
C316 |
C325 |
C334 |
Level 1
C411
Initial discussions have taken place regarding the evaluation of the CCI performance, e.g., by using the Maturity Model.
Level 2
C421
The CCI has established an initial framework for evaluating its performance. This could be done by adapting the Maturity Model (including monitoring and benchmarking).
Level 3
C431
The Evaluation contains at least: Number of third-party funded projects carried out, number of patients treated in the CCI per year in relation to the number of new cases in the region; number of tumour specific patient pathways in use. Please also see criterion Evaluation in the Theme Patient Pathway.*,**
Level 1
C412
Initial discussions have taken place in the Interface Working Group (IF-WG) regarding the development of an overall research plan within the CCI (see theme 03 "Interfaces").
Level 1
C413
Initial discussions have taken place, e.g., via the coordination board on how the Patient Pathways used in the CCI are developed. The coordination board can entrust other working groups or partners of the CCI with the task.
Level 2
C422
An initial plan is drafted. This draft includes the implementation and evaluation of the overall Patient Pathways process within the CCI. See also Theme Patient Pathway and its supplementary documents on how to define a Patient Pathway.
Level 3
C432
The plan on how the Patient Pathways used in the CCI are developed is finalised.*,**
Level 4
C441
The plan is reviewed and updated and the fulfillment of previous objectives is documented.***
Level 1
C414
Initial discussions have taken place regarding the development of a continuous educational and training agenda for different disciplines and professional groups within the CCI.
Level 2
C423
A draft of the education and training agenda is formulated, which takes into account the different disciplines and professional groups. The professional groups that are active in the tumour-specific patient pathways should be addressed in particular.
Level 3
C433
The CCI has implemented a continuous educational and training agenda, coordinated with national/regional programs.*,**
Level 4
C442
The continuous educational and training agenda is reviewed and updated and the fulfilment of previous objectives is documented.***
Level 1
C415
The CCI has initiated the development of a strategic plan for the further development of the CCI.
Level 2
C424
The strategic plan for further development of the CCI addresses at least two of the
key points
and defines milestones for this point.
Level 3
C434
The strategic plan for the further development of the CCI is finalized and adresses at least four of the
key points
and defines milestones for these points.*,**
Level 4
C443
The CCI has finalized the strategic plan for further development of the CCI, which adresses all of the
key points
and defines milestones for these points. In case individual key points could not be addressed an explanation is provided.***
| Level 1 | Level 2 | Level 3 | Level 4 | |
|---|---|---|---|---|
| For the following points, the realization and implementation should be described*, responsible persons should be named (e.g. initiation of topic-specific working groups)** and the results should be available (e.g. minutes of coordination board meetings with results and measures derived from them)***: | ||||
| Evaluation of the performance of the CCI |
C411 |
C421 |
C431 |
|
| The CCI has an overall research plan |
C412 |
|||
| The CCI has a plan how the Patient Pathways used in the CCI are developed |
C413 |
C422 |
C432 |
C441 |
| The CCI has a continuous educational and training agenda for different disciplines and professional groups within the CCI |
C414 |
C423 |
C433 |
C442 |
| The CCI has a strategic plan for the further development of the CCI |
C415 |
C424 |
C434 |
C443 |